In 2007 our third son was born, we were expecting a healthy, normal birth, he immediately went into respiratory distress, and was flown to a NICU in St.Louis, Mo for possible heart lung bypass(ECMO). While in the NICU he was diagnosed with a very rare syndrome (Rubinstein Taybi Syndrome), this is the story of our journey, our new kind of normal.

Wednesday, November 11, 2009

Wordless Wednesday


Tuesday, November 10, 2009

My mouse

I can never get this child to put food in his mouth himself, he throws it as hard and as far as he can when I put food on his tray, but put it on the floor.........

Sunday, November 8, 2009

Max

The good news is Max is starting to be entertained by this that and the other for very short periods of time, but at least there are periods of time. The other good news is that he is sleeping for much longer stretches at night. 5 hours and then up for milk, down for about 3 more hours! The bad news is he no longer likes his sling, but wants to be carried around, or bounced almost constantly. He would be a great only child. Its just that hes not.




























Tuesday, November 3, 2009

Better late than never!

Happy Halloween!










Monday, November 2, 2009

Its that time of the year!