When I first learned about RTS, my first fear was how would society treat Alex? I worried how kids would treat him. Alex owns who he is and the kids who know him, love him. My fears are always immediately put to rest around children. Kids will be kids. They just love.
Saturday, September 6, 2014
Seven years ago on the seventh day of September you came into our lives. Your first experience in this world was fighting to live. For the next few years everything you needed to do was a struggle, a fight. Every fight, and every struggle I was there rejoicing in your success and crying through the setbacks. All that time I was there because you needed me. I was unaware of how much I needed you, how we all needed you. At first glance it may appear as though your hand is being, held, and guided through this life. But............
Friday, January 31, 2014
WELCOME TO HOLLAND by Emily Perl Kingsley Welcome to Hollandc1987 by Emily Perl Kingsley. All rights reserved
I am often asked to describe the experience of raising a child with a disability- to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this... When you're going to have a baby, it's like planning a fabulous vacation trip -to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." " Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guidebooks. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around... and you begin to notice that Holland has windmills... and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy...and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ...about Holland.
Gloria, mom to Scott (19 w/RTS) and Lizzy 4
I haven't made it to Holland yet, my plane crash landed. No one around me can help, they never crash landed before, there flights have always made it to Italy, their life vests don't fit me, and no one has a rescue boat, but they say they will pray for me. I'm treading water, and the waves are relentless, sometimes I am swept under by the waves with all the tests, appointments, and pain my son goes through. Sometimes the wave of grief pulls me under for the longest time, so deep I cant see the light at the surface.My friends and family are flying above, looking down at me with sad faces, they don't know what to do or say, sometimes they don't say anything at all, I watch them living as if everything is normal, I guess it is for them, dont they see me drowning down here. Even God it seems just watches me fight to keep afloat. I can see Holland's coast, its not too far away, I know that its "coast guard" will be what brings me to my new home. Thank you to all of you, you know my deepest pain, you share my broken heart, I see hope in all your stories. The strength that me and my family will gain, the lessons to be learned. Right now I'm still off the coast treading water, the waves are still too high, but I will keep fighting to stay afloat, and I will be home soon.
By Jessica Pruitt 2007
mom to Noah 6, Joel 3, Alex 4mo RTS
Tuesday, December 17, 2013
Saturday, December 14, 2013
Most people are good down to earth well meaning folks filled only with good intentions. It's not everyday you will run into someone who has every intention of ruining your day, and can't see the good in anyone or anything. These naysayers aren't misunderstood, they make their point known and it can not be mistaken.
It is the kind folk who say something they think is nice, or don't know what to say so they try really hard to be sweet. For example a social classic "God won't give you more than you can handle", or " He knew what He was doing when He gave you a special child", and last but not least "I could never do what you do". Why you ask do I bite my lip and draw blood when I hear these well meaning statements? They all stem from a place of feeling sorry. Yes indeed there was a time I felt sorry for myself for having a differently abled child. For sure it is still filled with daily challenges most people don't think twice about. Making simple plans is made harder, and extra steps are added to everyday routines. It is what it is. Don't be sad for me and my family. We got this!
P.S. You would too.............................................