Alex was born with Rubinstein Taybi Syndrome. Pulmonary hypertension at birth. Malrotation of the intestines. Uracheal cyst Phase 2 kidney reflux (right side) Angulated thumbs mild near sighted in right eye dysphagia PDA
HOSPITALIZATIONS: Was in NICU for 6 weeks on oscillator for 5 days, and ventilator for 3 weeks. hospitalized at 2 months with aspiration pneumonia g-tube placed at 4 months SURGERIES: Malrotation corrected Uracheal cyst removed at 3 weeks old
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If you just got the news that your little one has Rubinstein- Taybi Syndrome, please feel free to contact me. There is no greater support than from someone that is traveling the same path. I would love to talk with you. firstname.lastname@example.org