Alex was born with Rubinstein Taybi Syndrome. Pulmonary hypertension at birth. Malrotation of the intestines. Uracheal cyst Phase 2 kidney reflux (right side) Angulated thumbs mild near sighted in right eye dysphagia PDA
HOSPITALIZATIONS: Was in NICU for 6 weeks on oscillator for 5 days, and ventilator for 3 weeks. hospitalized at 2 months with aspiration pneumonia g-tube placed at 4 months SURGERIES: Malrotation corrected Uracheal cyst removed at 3 weeks old
Please contact me!!!!!
If you just got the news that your little one has Rubinstein- Taybi Syndrome, please feel free to contact me. There is no greater support than from someone that is traveling the same path. I would love to talk with you. japruitt99@msn.com
Alex's angels breathed for him for the 45 minute flight
Alex"s helicopter
Flown to St.Louis at 1 day old
very sick
ear muffs to keep it quiet
Room #1849 (green hall)
Alex on vent
5 days old
Mommy finally gets to hold you
2 weeks later!
H. Farouk Sadiq, MD
Dr. Sadiq.......Alex's faithful visitor in the NICU
Dr. Sadiq and Alex
Leaving a footprint
last day at NICU October 20, 2007
Thank you CGCH
We love you Dr. Walentik, Dr. Sadiq, Dr. Darling,Katie,Jen,Lisa, Pat, Debby, Kathy, Jessica, Jennifer, and every last one of you respiratory therapists!!!
2 comments:
:-) Just an old follower. Sure would like to hear an update on you and the boys. Hope you all are fine!
First stop here and loving it. Thanks for sharing :)
xox
Ash
http://abpetite.blogspot.com/
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